About us

We are a hard working, family of eight. Swimming in the sea when we aren't busy on our small holding. Daddy dragon has to work away a lot, so this blog is to let him keep up with our adventures at home.

Tuesday, 12 December 2017

First lost tooth


I am pretty sure, somewhere on this blog is a post of that very tooth's arrival. 


I have no idea who told my baby boy he could grow up, and get adult teeth. 

 I am so thankful for each day with this precious hatchling. 

Advent day 12 Holiday train


As this month


Rapidly runs away at speed, 


And we try to keep up


With all the excitement and activities. 


Happy December! 

Saturday, 9 December 2017

Advent day 9 - Snow day!


It actually snowed all day. 

Not too much stuck, but some is better than none. 


But snow brings waiting. 


Thankfully, they are pretty good natured hatchlings. 

Thursday, 7 December 2017

The weather outside is frightful


But our new stove is warm and delightful. 

And as the wind blows strong and shows no signs of stopping. 


And the water levels creep up higher with each tide rising... 

Might as well snow, 

let it snow, let it snow! 



Advent day 8 - Baking and Beaded wreaths


Quadruple chocolate loaves, 


And tried beads... My favorite bead for small hatchlings. Especially, clumsy ones. 


This boy made a festive spy ring. 

It is still a wreath, too, Mama! 


This lady was delighted with all the pretty. 


And this one reluctantly shared. 

Happy Friday! 

Advent day 7 Mince pies


I am using two recipes this year. 

My favorite has always been Nigella's port and cranberry recipe. 

But I have fallen completely for the Merry Gin'mas recipe over here. I want to make another batch with port, and another with Brandy, and another whiskey, and another port. 

Honestly, I could just eat the lot with a spoon! 

http://www.foodiequine.co.uk/2017/11/boozy-gin-christmas-mincemeat.html?m=1



Tuesday, 5 December 2017

Advent day 6 - Christmas racers and bouncing unicorns


No need to encourage boys to participate with the addition of small motors. 


This hatchling was sold on the idea, the moment she spotted glitter horns. 


Peel and stick foam has to be one of my favorite craft products. 


The results are easy and satisfying to small fingers. 

My baking buddy


Monday, 4 December 2017

The morning walk to the school bus



A tired hatchling


It is hard to be a hatchling.

Days start early.

Sometimes, at just 4am.

And days are long...

So very long, if you do wish to nap.

And nights are busy, extra busy for this hatchling, with a drainage bag that leaked, a pump that beeped, and cough that went on and on.

So, now she sleeps. 

And bedtime is still two hours away. 

Advent day 5: Letters to Father Christmas


An exercise in wish fulfilment, writing "I want letters..."

Hatchling number 6 wants a glitter unicorn and world domination.

The older hatchlings want a baby hatchling.

And an assortment of things from telekinesis to extinct animals.

Good luck Santa, you have your work cut of for you!


Sunday, 3 December 2017

Singing in the car



Advent day 4 - Rice Krispy Reindeer


Oh Christmas tree


Oh Christmas tree, oh Christmas tree... 


Your ornaments are history. 

Advent day 3 Gingerbread men Brownies



The whole house is filled with the smell of rich chocolate brownie.


But we needed to make it seasonal, of course!


Recipe

750g Butter

750 g Dark chocolate

12 large eggs

2 tbs vanilla extract

1 kg of sugar

450 g flour

100 g cocoa powder

Bake at 180 for 25 minutes.

Saturday, 2 December 2017

A Tubie Friend

I remember well the fear I felt, when I realised that this precious hatchling would need a permanent feeding tube.

I spent a long time in denial.

And when her consultants made the decision, I felt bereft. 


She has taken each step in her stride, and gracefully accepted her tube.

In truth, I think she is rather attached to it. It not only feeds her, but provides a level of comfortability, she hadn't had, possibly ever before.

Today, she received a tubie bear, from Tubie friends.

I wasn't sure how she would receive this, as she was quite upset when I put an NG tube in a stuffed toy previously.

She gave her new friend kisses.

That was a good start.


She inspect the bear's tube. 

Gave him a good once over.

And then went to get her stoma care kit. 

Bear needed a tubie pad.

Of course.


I am incredibly thankful to the Bear surgeon's at tubie friends, I think this cuddly friend is already making a difference. 

She hooked him up to her pump, and gave him his medicine, and now they are both tucked up in bed together.

If you know anyone who's child, or your own might benefit from a tube friend please visit their site - 

http://www.tubiefriends.com

Tuesday, 17 October 2017

A new chapter


My darkest days have tended to be in hospital. I really struggle in hospital. Feeling trapped, powerless to halt the Rollercoaster of tests and treatments... And worst with neurology... The 'under observation'. Is there anything worse than spending four or five days... Especially over bank holiday weekends because it always happens over those, where you are imprisoned on a ward while they watch your child seize over and over and do nothing. While they watch them vomit again and again,  deteriorate and do nothing.

That waiting kills me every time. Then just as I am ready to loose the plot, a flurry or tests, and treatments which days earlier, I might have had the head space to cope with... And frankly I am energy less. I feel like I have nothing left. Numbness takes over as they diagnose and decide our fate and if we are to escape home. Then at home, I feel like hiding, a lot of sofa time while we try to find our feet again. With new routines, equipment, heal from a surgery. 

I tend to loose 10lbs every time we set foot in the hospital... 

This visit is set to be no different on the emotional difficulty level, I think 10lbs may be an understatement of loss this time.

And yet, and yet, for the first time in a long time we feel more confident that we are on the right path, that we have more understanding. And that our medical team are working together.

More scary diagnosise loom, but others are laid to rest.

After a long day's night, we are working, hoping, praying for gentle, calmer tomorrows.